Laura is mum to 4 year old Brody who is undiagnosed and has a syndrome without a name.However, he also has epilepsy, global development delay, hypertonia, hypermobility, sensory processing disorder and is most likely on the autistic spectrum. Laura asked us to highlight her nappies campaign.
“Last December I was becoming increasingly frustrated at the fact that Brody was growing out of size 6+ nappies and that this was the biggest size available in supermarkets. As a result, I posted on a leading supermarkets Facebook page.This gathered lots of support and some momentum, so I started a UK Change petition asking all supermarkets to consider selling or manufacturing bigger nappies for children with disabilities.
Pull ups, which you can buy in supermarkets, are designed for children in the process of potty training. For this reason, there are fewer nappies in a pack and the absorbency isn’t as good. They’re not adequate for a child who is doubly incontinent. Not only this, it would cost a small fortune for parents to buy Pull Ups, as one pack may last only a day or two.
Purchasing nappies online is expensive and not a quick solution for someone that needs a pack as soon as possible.
Cloth nappies are also available of course and they are great for lots of families. They just aren’t a best fit solution for everyone.
I truly believe that there is a huge gap in the market for bigger nappies. Whilst the continence service is great, it is inconsistent in its approach and the service you receive very much depends on where you live. Referral age, eligibility, waiting times and the number of nappies you receive differs hugely throughout the UK.
I have been fortunate that a few supermarkets to date have been interested and a product should be reaching the shelves of one or two supermarkets soon. Watch this space.”
You can connect with Laura via https://www.facebook.com/brodymeandgdd
If you have a burning issue that you would like us to highlight on Carers Club do get in touch.